Hope you are feeling well. Always try to keep positive thoughts. I made it thri my 1st month, not knowing what to expect but i always keep my head up, keep praying and always always positive thoughts.

Img.ifcdn.com should work. It's a lotus. I have it on FB.

Kay S, interesting .. when I put in that information into Internet explorer .. it came up: The website declined to show this webpage. I wonder why? I am not that techie. I then clicked on More Information and got:
More information This error (HTTP 403 Forbidden) means that Internet Explorer was able to connect to the website, but it does not have permission to view the webpage.

Maybe someone on the Forum more techie can answer this. No big deal .. but I thought the concept was neat! Thanks to all! Katherine (by the way I am not active on FB .. wanted to put it on my Samsung Tab 2 that I travel with as an Android app)

I could share it with you on Facebook. It is pretty neat. It expands from a dot to a lotus and that's your inhale and back to dot, that's your exhale. I am not techie, I had a hard time copying the address to you. 😉

.. no problem Kay .. I just don't do FB! Hugs to you though! Katherine

Hello @cila,

My pulmonologist said there is some connection between very low Vitamin D and lung disease but they don't know the specific connection. A lack of vitamin D is linked to an inability to effectively fight infection.

I had extremely low Vitamin D and have been seeing an endocrinologist for about 5 yrs. Vitamin D is actually a hormone rather than a vitamin and helps with calcium absorption. Per my endo doc, I take 50,000 IU (prescription) of vitamin D each Wed and 5,000IU the other 6 days. No, I don't have stomach cramps - you should let your doctor know about this. I have blood work every 6 months to look at my Vit D level ... in 5 years it is remarkable how my Vit D level has gotten toward the 'normal' range.

Paula

Paula, thanks for that information. I just went back and checked. The last time my VD was checked was May 2016 .. it was a "Value 77.9" with a Ref Range of "30.0-80.0 ng/ml" .. so thanks to you I double checked to see where I actually was! I now will watch it and see that I for sure stay in the normal range. Thanks for the heads up! I do take 3,000 IU per day. Katherine

Thanks Katherine, I will do that and I will check it myself. I will try to eat some fruits and veg. to increase my vitamin A & B instead of pills. when I see my Dr. in 3 months do they do CT scan? How do they find out if the meds. are working? Thanks for all the advised. Cola

Cila, in terms of the Vitamins .. you need to request that your doctor request it when you have your blood work done. In terms of your antibiotics it is really your pulmonologist putting a puzzle together in my opinion based on my experience. It is looking at your previous CT scan .. your current one .. looking for any changes .. sputum samples changes .. AND asking questions on how you feel. That is why it is important to have a doctor who is knowledgeable about MAC/MAI .. they need to put all those pieces together to come up with a diagnosis of just where you are at the current time. At least that has been my experience. By the way .. I just have my local Internist check my Vitamin levels .. not that difficult .. can be done right along with other blood work if requested. Good Luck! Katherine

Thanks Paula, for the info. you have been taking vitamin D for a while? Sometimes I feel bad for my stomach for all the pills I take b/c I usually don't take that many pills. My primary Dr. didn't tell me how long I need to take them. I appreciate your help.
Cila