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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
My husband was just diagnosed with MAC and put on the cocktail of three drugs they give to treat the disease.
After day one on the drugs he was miserable he was fatigued couldn't eat and was just miserable. He was suppose to be on these 6 pills three days a week . Any body have this experience
Replies to "My husband was just diagnosed with MAC and put on the cocktail of three drugs they..."
New resources -including a hotline to talk to someone at http://www.bronchandNTM360social.org as well as other educational materials on http://www.ntminfo.org. You may also look into joining an ongoing trial for patients with MAC
I have a question uf anyone can answer this for me..three years ago..diagnosed with MAC..Pulmonary Dr thought it was cancer when ge looked at chest exray...but did bronchial biopsy and continueed to be negative. ...Dr put me on antibiotics for one year i took them...He did blood work and sputum tests off and on during that time..The last time ..I suggested a CT to see if any of the ground glass obicies th a t had been seen in the beginning had changed...CT result was Lung Cancer..and to this day..I think if i wouldn't h ave requested that scan..the cancer may have been worse.. was diagnosed stage 2A..surgery and chemo..I lost confidence in that Pulmonary Dr. And never went back....So always be involved in your heathcare...Drs can be wrong.....
t time...
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Yes, I have had MAC twice. My 1st lung doctor told me to try some antibiotics, and if they didn't work--we'd try some more--because I was going to be on 3 antibiotics for 2 yrs & I had to be able to tolerate them. Have him talk to his doctor about his symptoms.