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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@debbiet

<p>I am looking for patients that have MAC to learn about their meds and sidemeffects</p>

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Replies to "I am looking for patients that have MAC to learn about their meds and sidemeffects"
Colleen Young, Connect Director | @colleenyoung | Jan 28, 2016

Hi @debbiet,
Have you seen the great group of people sharing about MAC on this Connect discussion thread? https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/

Please click on the link and join in. All welcome.

Colleen
Connect Community Director

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kearney | @kearney | Apr 20, 2017

Can you please give me any helpful info on MAC ??

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Colleen Young, Connect Director | @colleenyoung | Apr 20, 2017

Welcome to Connect, Kearney.
I moved your message to the "MAC & Bronchiectasis" group where members are sharing a wealth of information about MAC. I encourage you to click VIEW & REPLY in this email and to read through all the messages in this discussion thread.

Be sure to go to the MAC group page here: http://mayocl.in/2ouP4e8 and follow the group to receive notifications when new messages are posted. You can also browse through all the discussions.

When were you diagnosed with MAC? How are you doing? We look forward to getting know more about you.

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gjaleski | @gjaleski | Jun 19, 2023

I find it difficult to find quantitative data on Mac med side effects.

I am also unable to find quantitative data on life expectations for untreated cavitary Mac.

I also have IPF, so I want to avoid useless treatment for Mac if my IPF will affect my health sooner.

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