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@debbiec

Local South Florida pulmonologist has confirmed MAC. Treatment to be discussed at next doctor's visit. Internet research has me worried about possible side effects affecting my ablity to get through work week & be care giver to sick husband. Am wondering if I should seek top notch specialist in local medical/university centers. A penny for your thoughts... Have Rheumatoid Arthritis & have been taken off 9 yr. treatment of Humira which is suspected of having compromised my already weak immune system. Any R.A./MAC patients out there?

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Replies to "Local South Florida pulmonologist has confirmed MAC. Treatment to be discussed at next doctor's visit. Internet..."

If asking me, yes.

Hi, I have a question please. Do you cough a lot if you have MAC. If you do is the sputum clear and thick?<br><br>

Apportee...you asked if you cough alot with MAC....for 2 years...before i was diagnosed from the washings from a bronchoscope which grew the cursed MAC.....every evening from 5 pm for 2 to 5 hours I would cough ,wheeze and bring up lots of thick..white or clear.mucus....which tested in a routine culture...negative. I heard Dr Daley an NTM specialist at National Jewish...comment that MAC mucus is Clear to white.terrid

Apportee (do you have a first name?) .. I might add to Terri D. that in addition to the clear/white mucus .. I also have light to dark yellow spots in the middle of the mucus at various times. Dr. Aksamit doesn't seem to be too alarmed .. just asks me the size and darkness of the yellow spots. I only add this so people won't be too alarmed if they see yellow in their sputum. It SHOULD be reported to your doctor .. BUT do not get too worried. it has happened to me all along for years .. and I am still hopping along! Hugs to all! Katherine

Hi Cathy! I was diagnosed with MAC in 2005. Pretty sure I caught it in a hottub. Mayo treats it with alternating month antibiotics. 28 days on tobramycin, then, 10 days twice daily cipro 500 mg twice a day. this seems to keep the infection at bay.

hello my name is marie i also live in tampa and looking for a dr i also have mac can you help

Welcome @marier. We have a few Floridians on this forum. @cathyt @dixer @boomerexpert @coylemel333 do you have any recommendations for a MAC specialist in the Tampa area?

Marie, you can also call Mayo Clinic Jacksonville for recommendations http://mayocl.in/1mtmR63
When were you diagnosed? Are you receiving treatment?

Hey Marie! If you live near downtown and TGH, or near St. Joe's hospital off Dale Mabry, those docs will be better than the rest in the area - they're a bit far for me so can't access them myself. I live in Palm Harbor and have yet to find someone who demonstrates excellence. I will let you know if I find someone recommendable.

Colleen how can I move all of my Mayo Clinic posting to a different email address. So I can read them at a time that suits me? Thanks!

Hi @cowboy1997
Here's how to change your email address:
1. Go to Account Settings https://connect.mayoclinic.org/account/
2. Enter the new email address.
3. Scroll to the bottom of the page and click "Save Profile".

While you're on Account Settings page, you may wish to tick the check box that says "ONLY INCLUDE THE SPECIFIC THREADS AND GROUPS I AM FOLLOWING IN MY DIGEST." That way you'll only get the information you're interested in.