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@lisalucier

Hi, @tjp4 - thanks for your well wishes for @schwannjohn. It sounds like you've had to deal with pain for a very long time, and that must be extremely hard. Do you also have schwannomatosis, @tjp4?

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Replies to "Hi, @tjp4 - thanks for your well wishes for @schwannjohn. It sounds like you've had to..."

Hi lisa, I do not have tumors but the earlier post included pudendal nerve tumors in the ischiorectal fossa area which caught my attention. I wanted to know more for my issues. After visiting 5 colon and rectal surgeons with different conclusions imseeking answers. 2 doctors have mentioned to see a pain doctor and take meds forever. Dr. Kelly Scott with UTSW in Dallas told me I had bursitus and torn ligament in an area no doctor would try to fix. Scott heads up the pelvic floor. So frustrating.