Hi @keikowacko After 1996, I returned to Mayo in Rochester again in 2007. I had the possibility of NF in 1996. I also saw a neurologist first in 2007. With an MRI, I had confirmed spinal tumors. Then, I became a patient of Dr. Robert J. Spinner, a neuro-surgeon. I had two surgeries in 2008. He is an NF and Schwannomatosis expert there. Through Dr. Spinner, Schwan was confirmed by genetic testing in 2008. I return to see him regularly to monitor those tumors. I’m not an expert in the steps for appointments, but you may need to see the neurologist first. The neurologist could choose tests, perhaps MRI to look into a reason for pain. I felt pain in a particular area and that is how my NF had returned from 1996. Since Dr. Spinner is a surgeon, you would go on to see him if you needed surgery. Both times, my primary care physician made the arrangements for me to go to Mayo. I don’t remember the name of the neurologist I saw, a woman, who I saw just once. I know you can contact Mayo on your own, also, and request appointments or doctors. Sorry, that I cannot be more helpful.