Replies to My daughter is now 10 years old and was diagnosed with ET when she was 9….

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Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)

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@mabehl

My daughter is now 10 years old and was diagnosed with ET when she was 9. Her platelet level was up to about 1.6 million and is now on hydroxyurea. I was just wondering if any one else has had experience with this disease in such a young child. I am very uncomfortable with her being on this medication and the disease itself since it is so rare, especially in children. Any info would help.

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Replies to "My daughter is now 10 years old and was diagnosed with ET when she was 9...."

piglit | @piglit | Mar 7, 2013

Hi mabehl. I have not had any experience with a child as you are with your little girl, however have myself have had problems with a blood clotting disorder, My advice to you would be to make sure that you have a really good haemotologist and a good g.p. both I have and have so found this to be a great help to me over the past years. You will be in my thoughts and prayers, always here anytime if you need to talk Piglit

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