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Bellatrac (@bellatrac)

Facial Pain - Empty Nose Syndrome

Ear, Nose & Throat (ENT) | Last Active: Sep 4 5:36pm | Replies (93)

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Hi @healthiswealth1 you may have noticed I moved your post to this discussion on empty nose syndrome in order for you to interact with others who have similar experiences. Simply click VIEW & REPLY in order to see your post.

I'm tagging a few other members who have Empty Nose Syndrome or Atrophic Rhinitis, like @joannemaisey @ashleyhall @jrsigurl @stephenjohn @warpedtrekker

Here's a list of related discussions on Connect.
– Vivaer nasal valve remodeling and Empty Nose Syndrome? https://connect.mayoclinic.org/discussion/vivaer-nasal-valve-remodeling-and-empty-nose-syndrome/
– Where did my snot go? Atropic Rhinitus mystery case https://connect.mayoclinic.org/discussion/where-did-my-snot-go-atropic-rhinitus-mystery-case/

In your search for advances in regenerative medicine, you may wish to search for clinical trials here: https://www.mayo.edu/research/centers-programs/center-regenerative-medicine

Have you had a chance to talk to your ENT about treatment options?

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Replies to "Hi @healthiswealth1 you may have noticed I moved your post to this discussion on empty nose..."

Thank you for the response. There are very minimal treatment options as only 6 ent worldwide attempt to treat ens. Treatments are also out of pocket unfortunatley and results tend to be short lived as others have mentioned. It would be great it mayo clinic could conduct a clinical trial or engage in more research as this condition a long with atrophic rhinitis have limited exploration in in regards to treatments and someday cures. It would be groundbreaking if more stem cell or regenerative measures can be undertaken for a community that has no formal trearment protocol to begin with a long with very devastating bodily and autonomic health issues that progressively worsen.

Thank you for reading.