← Return to Inclusion Body Myositis: I'd like to talk with others

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@mklam

I empathize with your unfortunate disease experiences. I relate to the pain of your losses. My husband has inclusion body Myositis. He has lost so much muscle that as a former relented athlete he can barely walk. I have cried my heart out so many times over the losses he has experienced with difficulty swallowing, attempting to walk down a step or open a bottle of water. All these things he has valiantly gone o. On his attitude to be resourceful and find something to bring him joy. I believe this is the key thing in this type of situation. Find something I. Life that can bring you some happiness. Keep on enjoying life. This is all we have left . I only hope you can find something in your sphere to give you some happiness

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Replies to "I empathize with your unfortunate disease experiences. I relate to the pain of your losses. My..."

I have 4 wonderful children and a very handsome grandson who is 7 months old. I take care of my 90 year old mother who is in an assisted living nearby. I'm active in my little country church, and enjoy an eccumenical bible study weekly, and also a book club monthly. I enjoy 2 "coffee" groups weekly. This is when I am not expieriencing a flare.So I have made a life, and a pretty good one at that. I have fought to not be defined by my diseases, sometimes we all just wonder.....I have been divorced for quite a few years, and am so proud of my children, they are my happiness. Oh I am blessed, but sometimes....?