← Return to Is there anyone else out there with pure autonomic system failure?

Discussion

Is there anyone else out there with pure autonomic system failure?

Brain & Nervous System | Last Active: Aug 8 3:27pm | Replies (49)
Comment receiving replies
@adelaide

Interested in talking with other women who are coping with Pure Autonomic Failure (PAF). I am a retired registered nurse educator. How are others coping with problems such as the supine hypertension? Are others heat sensitive?

Jump to this post

Replies to "Interested in talking with other women who are coping with Pure Autonomic Failure (PAF). I am..."
kathiweaver | @kathiweaver | Mar 15 8:52pm

Hi I have PAF & am a retired RN. Saline IVs at home help me. They say we often have low circulating blood volume.
It's frustrating for sure

VIEW AND REPLY
jeangreer | @jeangreer | Aug 6 1:38pm

I am suffering the PAF syndrome with most symptoms.

VIEW AND REPLY