I was diagnosed in January when all of a sudden I spent a week not being able to get out of bed. I put it down to flu but remember saying that i just dont seem to have other symptoms other than tiredeness (Extreme tiredness!). Thats when it began. Got diagnosis of mixed connective tissue disease and am now on hydroxychlorine. My main issue is the tiredness. Since my flare up that was so bad in January, I've never been the same. I am tired all the time. I am a single mum of a boy aged 9 and I've been soo active with him in school holidays and done so much with him all these years. this year is the first year, I have done nothing - literally. He's like, mum why are you always just resting? i cant even take him to legoland or for a run in the park with a football. Well, i can, but then I'll be knocked out for the next two days. This is really starting to get me down too, alot. No one seems to get it. Im not just making it up, when i say I'm tired, I am exhausted. I can be ok for an hour and then if you see me two hours later, I'm in zombie state. so unpredictable. EllashaB, I feel for you. This is new for me too. I also need advice on how to slow down. I have a full time demanding job also. Some days i just cant think straight now. HELP 🙂