Connect
← Return to Hidradenitis suppurativa
Discussion
Comment receiving replies
@autumnleaves I think no matter how hard we try, we all have those days when our ailments get the best of us. For me, these days it's my hearing. In social situations I often cannot hear/understand a thing. Last year when our kids were home for the holidays and we all gathered in the family room with many conversations, I had to excuse myself and explain that since I was totally in left field I was going to use my IPad.
After mentioning Dreft, it occured to me that it must have something strong in it, it was the only thing that got out formula stains!
That's a small percentage of people who are affected. Hopefully you will still reach an age where it will be less troublesome.
Are there any real experts on it whom you could go to?
JK
Replies to "@autumnleaves I think no matter how hard we try, we all have those days when our..."
@contentandwell None that don't cost an outrageous amount to go to and aren't covered by my insurance and I only know of one. I also know of a few that have gone to her and their treatments aren't helping at all. My dermatologist told me that it would require me to have my sweat glands removed and he said he would not perform that surgery because of the dangers it opened me up to. And then he wanted to put me back on the pill (post menopausal/husband had prostate cancer twice, surgery and radiation) ... can we say it would be the immaculate conception if I were to get pregnant ....... in order to do a new treatment and in researching that treatment and women in my age bracket, it was scary what was happening to these women in other organs as a result of the treatment so I decided I'd rather deal with a disease at least I know something about than to head into the unknown with poor results. 🙁
Connect
@contentandwell - Do you have hearing aids/are you seeing an audiologist? There have been a LOT of improvements in those technologies in the past few years -- my mom has been on them for at least ten, and they're VASTLY improved since then. She just got a set of hearing aids that actually connects to her phone via bluetooth so it comes right to her ears to help her hear better. There's a TV booster as well that connects to her hearing aids so she can turn up the volume for herself but it goes directly to her hearing aids so the TV's not blasting. I think this is the brand she got: https://www.oticon.global/hearing-aid-users/hearing-aids/accessories/connectline. But I'd make an appointment with your audiologist if you're having problems, especially if you haven't been in a while. There's truly been huge improvements in the technology that should help. Good luck!