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Hidradenitis suppurativa

Skin Health | Last Active: Sep 1, 2021 | Replies (55)

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@autumnleaves

@contentandwell Thanks so much for your compassion and encouragement. I looked up the percentage on those suffering from HS and the only percentage I found was put out in 2007 ~ HS affects at least 1% possibly 4% of the global population. I'm sure that has changed since 2007 but still don't think it's a large percentage. And I noticed that it said it rarely affects people past 55 and I'm 63 and it's alive and well in me. But I tend to be in the "rare" stage ... haha I tried Dreft and wasn't able to use it. The only soap I've found that I can use on my skin is Unscented Dove, and then Arm and Hammer's Oxi Clean on my clothes. I'm post menopausal but the PCOS still plays a part in it which surprised me. My primary care doctor feels so badly for me because he can't help me but occasionally he puts me on an antibiotic that helps clear up obstinate ones and it does help, just doesn't always work on the more invasive ones. So basically when you have a disease like this with no cure, you learn to live with it and press forward and thank God that it's not worse. I choose the high road, but not to say that there aren't days when it gets the best of me and I do feel sorry for myself. Thanks for responding and caring!! 🙂

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Replies to "@contentandwell Thanks so much for your compassion and encouragement. I looked up the percentage on those..."

@autumnleaves I think no matter how hard we try, we all have those days when our ailments get the best of us. For me, these days it's my hearing. In social situations I often cannot hear/understand a thing. Last year when our kids were home for the holidays and we all gathered in the family room with many conversations, I had to excuse myself and explain that since I was totally in left field I was going to use my IPad.
After mentioning Dreft, it occured to me that it must have something strong in it, it was the only thing that got out formula stains!
That's a small percentage of people who are affected. Hopefully you will still reach an age where it will be less troublesome.
Are there any real experts on it whom you could go to?
JK