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Hidradenitis suppurativa

Skin Health | Last Active: Sep 1, 2021 | Replies (55)

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@contentandwell

@autumnleaves I am so sorry for anyone dealing with something so pervasive. I can only imagine how discouraging that must be. Even when I was dealing with cirrhosis I did not have physical problems from it on a daily basis.
I too will pray for a cure to this. Do you know what percentage of the population is affected by it? Of course the greater the number the more apt there is to be research on it.
Speaking of detergents, I was thinking, would Dreft also be a good one to use? It's the one that is suggested for babies so I would assume it must be pretty gentle. Tide has always been known as being somewhat irritating because it's pretty strong, but I think they have other more gentle versions of it now.
JK

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Replies to "@autumnleaves I am so sorry for anyone dealing with something so pervasive. I can only imagine..."

@contentandwell Thanks so much for your compassion and encouragement. I looked up the percentage on those suffering from HS and the only percentage I found was put out in 2007 ~ HS affects at least 1% possibly 4% of the global population. I'm sure that has changed since 2007 but still don't think it's a large percentage. And I noticed that it said it rarely affects people past 55 and I'm 63 and it's alive and well in me. But I tend to be in the "rare" stage ... haha I tried Dreft and wasn't able to use it. The only soap I've found that I can use on my skin is Unscented Dove, and then Arm and Hammer's Oxi Clean on my clothes. I'm post menopausal but the PCOS still plays a part in it which surprised me. My primary care doctor feels so badly for me because he can't help me but occasionally he puts me on an antibiotic that helps clear up obstinate ones and it does help, just doesn't always work on the more invasive ones. So basically when you have a disease like this with no cure, you learn to live with it and press forward and thank God that it's not worse. I choose the high road, but not to say that there aren't days when it gets the best of me and I do feel sorry for myself. Thanks for responding and caring!! 🙂