Those that are close to me, friendship wise, know about the disease but still think that "depression wise", getting me out is the solution and don't stop to realize that in the heat, it's a sentence for more sores. But I think it's more that they are just trying to help and don't know how. When I do turn them down, I talk about how that will affect me, unfortunately, but that I appreciate their concern. My family completely understands and doesn't put me in that spot. In fact if they think it will be the slightest warm, they are looking for solutions to the situation. I'm blessed!!

I try to tell them that getting out in the heat only makes the sores come more rapidly because the exposure clogs pores that I can't reach and causes more sores. Getting out and about does help the whole depression aspect some, but what I go through to make that possible isn't worth it. I've been told to go gluten free and hundreds of other things that will cure it and of course none of them work. The issue is not what I eat, or what I try to put on it or bathe in ... it's an issue of large sweat glands and clogged pores with as little as a hair that doesn't come through the skin. No matter how many times I explain this, friends just don't seem to get it because they don't understand it for some reason. It's frustrating but I've gotten to the point where I can't help that they don't understand, I just deal with it and push on.