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I have had HS for about 12 yrs and have just undergone my 4th surgery.. Im so sorry you have this disorder. Plain and simple, it always hurts, no one seems to understand HS and everyone tells me what they think will cure me. I was small, fit, ate good and had great bills of health and still developed this. For a few years I was going to Dr to have my abscesses lanced about once a week, plus had a life supply of Keflex. I finally went under the knife for my left arm pit and both groins. It came back under my right underarm (surgery again) then came back under my left arm with revenge. I had my whole under arm removed and put on a wound vac to help heal. I thought I was done but it came back 8 yrs later on my pelvic bone area and it was surgically removed along with my groin and under my vagina. I have a hole the size of a child's football that can't be stitched up. a week after my release from hospital I was taken back with major infections and stayed there another 9 days. I am uncomfortably home, by myself and having great pity parties.
There are many websites that explain HS. Google Hidradenitis suppurativa.
Replies to "I have had HS for about 12 yrs and have just undergone my 4th surgery.. Im..."
I had one really large one on the back of my neck Jeanne Ann ... and so far it hasn't come back and it was the size of a extra large egg. It kept coming back over and over and each time, it got bigger and bigger. But it was more of a cyst consistency and less like the HS breakouts I constantly have. My doctor found an ointment that helps mine heal at least and takes a bit of the pain out of it but no matter what I do, it's just painful all the time. My dermatologist wouldn't do any surgery on the HS under my arms or in my groin area because he said, it probably would come back. And removing the sweat glands opens you up to more of a chance of cancer. So, still dealing with the HS and stay in as much as possible and I agree ... it's hard not to have pity parties because folks just don't get why I can't spend time out in the heat with them and think getting out of the house will help. I can have lunch with a friend but can't do anything physical or that keeps me outside for any length of time or I'm miserable. I never realized that so many people suffer with it. And having PCOS makes it worse even in the post menopausal stage that I'm in right now. Guess the hormones being messed up is bad for us ladies in more ways than one.
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I started using OTC soy estrogen called Soy Care and it has helped me tremendously....other brands did not work. also a good FB support group is out there ..much helpful info from people going through the same thing. hope this helps.
just type in Hidradenitis Suppurativa support group on FB search.