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GBS (Guillain-Barre Syndrome)

Brain & Nervous System | Last Active: May 26 4:09pm | Replies (20)

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@angelarisstrom

Thankyou Justin. I was struck down with gbs in Dec 2013 after i had a mmr booster. I had ivig for 5 days with no significant effects. I also took lyrica, some endone for the nerve pain. Neither were well tolerated so I weaned myself off & I took panadeine, nurofen, & zoloft, and used to find relief with a bath, or heat/cool packs depending on climate. Now 6 years post dx, i have residual pain numbness & weakness in various places around my body which I still manage with the above drugs, & physical therapy to maintain strength.
I have a mystery rash which flares around my arms & neck that drives me crazy. The only things that help relieve it are diluted apple cider vinegar or aloe vera & cool compress.
I would definitely like to chat with @casy or anyone who also suffers residuals.
Also is there anyone else who has gbs from mmr?

Kind regards
Angela

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Replies to "Thankyou Justin. I was struck down with gbs in Dec 2013 after i had a mmr..."

Hi, @angelarisstrom - I'd like to add my welcome to Mayo Clinic Connect. I'd also like to invite @lindy1956 @cintam and @lolla to return to this conversation and share any insights they may have about residual pain, numbness and weakness years post-diagnosis with GBS (Guillian Barre Syndrome). @suebreen54 also may have some thoughts.