Hello @casy, welcome to Connect. There are several older discussions on Guillain-Barre Syndrome (GBS) where some of the members may still be active. I'm tagging our moderator @kanaazpereira to see if we should move your post to one of the discussions so you will have more visibility and can meet other members who have discussed GBS.

Groups > Brain & Nervous System > GBS (Guillain-Barre Syndrome)
-- https://connect.mayoclinic.org/discussion/gbs-guillian-barre-syndrome/

Groups > Brain & Nervous System > My daughter suffers from Guillain-Barre syndrome
-- https://connect.mayoclinic.org/discussion/my-daughter-suffers-from-guillan-barre-syndrome-she-is-recovered-but-her-legs/

There is also a discussion from 2011 that has a YouTube video of a victim of Guillain-Barre syndrome and her story of sickness and triumph.
-- https://connect.mayoclinic.org/discussion/guillain-barre-syndrome-mayo-clinic/

@casy do you have any questions you are trying to get answered?

John