There are excellent neuropathy centers with lots of experience in GBS.
The Neuropathy Association (neuropathy.org) lists resources and doctors, and The Peripheral Neuropathy Support Network (neuropathysupportnetwork.org is a web based support service that tries to provide advice and resources. In addition the GBS/CIDP Foundation International (http://www.gbs-cidp.org) lists centers of excellence. Even though GBS is a rare illness, there is help! If you contact neuropathysupportnetwork.org and send in a question tell Gene Richardson (who runs it) that Dr. Berman (me) told you to write--I am on his Board and Gene often sends out emails collecting information to help specific people. We are a nonprofit and our resources are free. Hang in there!--Scott