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Liver Transplant for Primary biliary cirrhosis (PBC)
Transplants | Last Active: Dec 14, 2021 | Replies (75)Comment receiving replies
I am new here and in August of last year, I was diagnosed with AutoImmune Hepatitis and after a liver biopsy was told I have cirrhosis. I don't understand, but my doctor told me that there are no "stages" of cirrhosis. You either have it or you don't. But from what I see on here, it sounds like I have PBC. So confused. My numbers are normal now and my doctor says I should feel better than I did before I got sick, but I don't. I am tired a lot, the heat makes me sick and now I can't eat or drink certain things. At a loss and sad because I don't know what to do anymore to feel better. Some days are good, just not as many as I would like. Any comments would be appreciated.
Replies to "I am new here and in August of last year, I was diagnosed with AutoImmune Hepatitis..."
I was diagnosed with pbc in 1996 and still have a Meld score of only 14-15. I've been on the transplant list since early 2008.There ARE stages of cirrhosis: I am in stage 4 which is called "end stage" meaning my liver is not going to get any better - I have to have a transplant.
I also have good days and bad days. I agree with Rosemary A - rest whenever you are tired. I take a nap every day and take an epsom salts bath every evening. I use 2 cups e.s. per bathtub of water. I also add about 4 drops of lavender oil my friend makes. The bath makes your skin very soft!
Good luck, write me any time.
Sorry. I forgot to add the epsom salts will draw toxins out of your body. Also they are good for joint pain, etc..
hi was reading your post what foods are good to eat having hep-c cirrhosis 4 ...does your liver hurt and also my spline is big ..i get so wiped out for weeks sometimes..do you feel the same?
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It is no wonder that you feel confused. Many liver diseases share symptoms. You can read more about liver diseases om Mayoclinic.org. Go to the diseases and conditions link. I think you will find answers to your questions.
I understand how you are feeling. I, too, had similar symptoms when my liver was failing. (transplanted in 2009). My advice is to do all that is in your power to take care of yourself and try to eat and stay hydrated. Follow the advice of your doctor and work closely with him/her.