If the cyst causes symptoms that require surgery, there are very few doctors that believe that these cysts can cause symptoms. There is one doctor in Texas that removes them and people have great success from what I’ve heard. It amazes me that people’s symptoms completely resolve with surgery.

Hi,
I rarely take part in these discussions but I think this is really important. I’m under the care and treatment of neurologists at major Headache Center but they never consider my pineal cyst to be the cause of my symptoms. I am lying here (which I have to do every day) because with the dizziness, fatigue and constant headaches, even sitting for long stretches is hard, let alone standing. My tinnitus is horrible, it seems to be worse the second half of the day or maybe I just notice it more in the evening. It affects my ability to concentrate. My vision sometimes is off as well, feeling pressure in the eyes and blurred vision, I just want to close my eyes to rest them.
Looking back at Jeep’s symptoms, I seem to have similarities. I am in a number of headache meds, and have even been hospitalized for my symptoms but alas they are still present, years now.

Hello to All! I noticed recently that I was referenced in several messages, so I thought it'd be a good time to reconnect! I still have that Pineal Cyst as a guest in my noggin and it still reminds me daily that it's there. All of those lovely symptoms that I mentioned in my messages are still with me. And as an encore, I'm starting to develop peripheral neuropathy in both feet. I've read research about pineal cysts and neuropathy and it is indicated, so now I'm dealing with another blessing!

I have pretty much just learned to live with them privately. I rarely talk about them to anyone and just get through the day as I can. Definitely use "distraction" as a tool. I spend a lot of time alone at home on the farm since my wife works days. Plenty to do. But since I'm alone I take a lot of breaks and enjoy naps in the afternoon. I try to eat well, avoid caffeine and salt, and do my yoga stretching routine daily along with one sudoku. I do have to resort to Lorazapam once in a while when the dizziness and headache get bad. It's liquid so one or two drops sublingual does the trick and works quickly. I jokingly call it "Easy Now" when I tell my wife when Ive taken it. When it comes to dealing with the neuropathy, not much to do other than try to keep my feet warm and protected.

Wish I could say that life has been fun managing that cyst but I am able to get by. Not really interested in surgery but if it gets to the point of despair, I'm thinking that surgical techniques are getting better and better. I get an MRI every three years at the VA. No growth but still there.

So, I've managed to get by for quite a while now and hope to keep doing the same. I've read many messages of others doing the same, so hang in there and try to keep positive.

I have a 9mm pineal cyst.

It grew since last year 2mm from 7mm. The neurosurgeon says I'm OK and that basically it's my ptsd as I am a veteran and I laughed . If I was a cheerleader and 16 and just experienced headaches, I would be taken more seriously.

I have a plethora of symptoms. Tinnitus has been insane for I don't know how long now, it's getting worse. Light sensitivity can't sleep, adhd, cant concentrate , visual disturbances , migraines and if it gets really bad I have small seizures it feels like, etc.

University of Pennsylvania I was working with Dr O.

Needless to say his staff were awful at getting back to me. Unprofessional. Disrespectful. No wonder our veterans are killing themselves 22 a day. You ask for help, they say your lying .

I was diagnosed in 2014 with a 7mm cyst. Now it's 9mm. And the doctor I saw last year would have don't the surgery if it grew 2 more mms .

Apparently it did with this 2nd opinion. And yet still, their staff tell me it's caused by my ptsd and I need psychiatric help ... the pa even offered to set up consults with a shrink to lobotomize me with their crap pills. I tried everything. And so long story short, don't go to Philly for crap as I feel I am being discriminated against bc I'm a white female combat veteran. I patiently waited over 6 weeks for them to review my mri scans .