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Educating others on autoimmune diseases

Autoimmune Diseases | Last Active: Nov 21, 2016 | Replies (61)

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@blindeyepug

I totally agree. I was an extremely active, thin woman (actually modeled when I was young). I used to sky dive, scuba dive, hike, bike, one step away from being a black belt in Tae Kwon Do. Never weighed more than 120 pounds except during my pregnancies. Gained 50 pounds with each pregnancy and easily lost the pounds after. Then I got into my mid to late 30's. Things started changing. No matter how much sleep I got, I was overwhelmed with fatigue. My joints started swelling and aching. My muscles started to hurt. I could no longer wear my contacts. I was sensitive to heat and changes in weather. I started to not be able to lose weight. I had a complete hysterectomy because my doctor thought many of my issues had to do with ovary and uterine issues. Nope. The symptoms continued and got worse. Went to rheumatologist and endocrinologist. To make a long story short, I have been diagnosed with rheumatoid arthritis fibromyalgia, sogren's snydrome and I have a node on my thyroid. (Two sisters had thyroid cancer and had to have their thyroids removed.). I weight as much as I did when I was pregnant! I am on medication, but nothing makes it all go away or stops the pain.completely. I feel more and more people are having these sort of problems, and doctors don't seem real sure on what to do. Frustrating!! I know it could be worse and I try not to complain, but it is hard to have several chronic conditions with no hope for a cure and very little in the way of effectively managing symptoms without side effects from medication!.

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Replies to "I totally agree. I was an extremely active, thin woman (actually modeled when I was young)...."

Thyroid disorders cluster with Sjogren's so that might make you feel a little less cursed. I had Grave's disease about 18 years ago and have no thyroid now. So were you diagnosed with RA or did you have Rheumatoid Factor along with the Sjogren's? Get a world class endocrinologist if you can find one. GP's shouldn't handle thyroid in my opinion.