I've had Lupus/MCTD for 18 years. I have recently been diagnosed with Pulmonary Fibrosis, pretty much a death sentence, unless I can get a lung transplant. I can understand your fear. Have 'they' talked to you about a liver transplant?

They have, for now I am on Prednisone and Azathioprine which has greatly helped. It appears that my body was entirely inflamed. My Mom had MS and it apears that there is a genetic link for AH. Are you on a lung transplant list?

I'm not on a transplant list. My breathing isn't that bad yet, but I guess it progresses fairly quickly. Has the medication effected your original diagnosis?

No I actually have a ton of auto immune disorders, AH is the lastest. I am hoping that it will not progress and so far it seems to be. If it does go further in the future, then I will be a liver transplant patient. What are they doing for you? are you on meds??

For all the autoimmune disorders, I have tried Plaquanel and Methotrexate, but neither seemed to be doing any good. I only take 5 mgs of prednisone. I just began using oxygen when I do any cardio.

I too have tried those meds and nothing seemed to work for me, however when I do receive the steroid infusions, I seem to get more relief and my Psoriasis also clear up as though I have never had them. My optic Neuritis clears up as well. I just wish the steroids of any kind did not come with any side effects because I find that it is a temporary cure. Hope you feel better KimPf. xoxo

You may have been active with your Lupus and didnt know it , but the heat of the tanning bed brought out the symptoms. Feel better. xo

I was diagnosed last December with AH. I'm off the prednisone, now taking the azathioprine...per the biopsy, they caught it before my liver was damaged. I'm frightened, period. Appreciate anything anyone would be willing to share.