1. < Chronic Pain

"Electric Shock" type pain in my scalp!

Posted by Deby @deby, Aug 17, 2011

It feels like someone is touching my scalp with an electric wire or prod. Like a "zap" and then it takes a few seconds to get over it. It happens 2 or more times per MINUTE! It lastes for a couple of days usually and when it goes away it takes a few more days for my scalp not to be sore. I don't know how many times a year it occurs but when it does, like today, it drives me crazy. I walk around making weird faces and people stare at me. They think I have a headache or migrain but I don't, the pain is only on my scalp not IN my head. Sometimes the shocks occur over and over for a minute, then go back to 2 or more times per minute. It's the weirdest thing and I can't wait for it to be over. I never know when it's going to occur or what brings it on. Anyone ever heard of something like this?

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toiolinger | @toiolinger | Oct 25, 2018

I am new at the post. I think I have Arachnoiditis. Anyone has this disease? It is horrible. Chantaburi.

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1 reply
thelmalouise76 | @thelmalouise76 | Oct 25, 2018

I have been carrying this title of SPINAL SDHESIVE ARACHNOIDITIS SINCE 1976. however IT WASNT UNTIL I HAD SUFFERED GREATLY WITH PAIN THE DOCTORS COULD NOT FIND ANY REASON FOR! AND THEN FELL OUTSIDE MY SCHOOL AND ENDED UP IN A GREAT HOSPITAL YTHAT FINALLY TOOK SO MMANY TESYS I THOUGHT THEY WERE THINKING ME CRAZY. HOWEVER THE DOCTOR CAME IN. SAT AND DISCUSSED WHAT ALL TESTS HAD SHOWN. WHAT MADE HIM BELIEVE ME NOT KNOWING WHAT CAUSED THIS, WHEN I COULD NOT ENDUR THE PLACING A NEEDLE INTO MY SPINE TO DO A MYLEGRAM!
I found out that day that not all doctors are ethical. It was an intern who went through the spinal canal, causing instant paralysis that fateful day. The hospital however decided to not inform me that what had actually happened was I had an incomplete paralysis! I was paralyzed for months. Then when the feelings came back they told me it had all been IN MY HEAD!
nI have had electric sensations all over my body. I have been one of the first to join a group called COFWA. I have seen so many doctors I have given up of ever being able to be treated with respect and dignity. I finally found a pain doctor who went to college with my adopted mother. He had moved to California in his early career. I drive 200 miles a month just to get my RXs from him. IT IS WORTH IT!
I cant say enough about a caring and honest pain doctor. All others I have given up on. HIM however I will cherish and do al he asks.
I have researched and investigated every decent claim about this rare but painful condition. I think I can safely say that one day when God calls me home, I will not only leave my brain and spinal cord, but years of documenting papers so someday they WILL KNOW all about this THING!
I have begun to search out institutions and colleges to leave this precious gift to. I will keep all of you posted. Thanks for letting me vent. God be with all sufferers, everywhere.

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1 reply
lioness | @lioness | Oct 25, 2018
In reply to @thelmalouise76 "I have been carrying this title of SPINAL SDHESIVE ARACHNOIDITIS SINCE 1976. however IT WASNT UNTIL..." + (show)
@thelmalouise76

I have been carrying this title of SPINAL SDHESIVE ARACHNOIDITIS SINCE 1976. however IT WASNT UNTIL I HAD SUFFERED GREATLY WITH PAIN THE DOCTORS COULD NOT FIND ANY REASON FOR! AND THEN FELL OUTSIDE MY SCHOOL AND ENDED UP IN A GREAT HOSPITAL YTHAT FINALLY TOOK SO MMANY TESYS I THOUGHT THEY WERE THINKING ME CRAZY. HOWEVER THE DOCTOR CAME IN. SAT AND DISCUSSED WHAT ALL TESTS HAD SHOWN. WHAT MADE HIM BELIEVE ME NOT KNOWING WHAT CAUSED THIS, WHEN I COULD NOT ENDUR THE PLACING A NEEDLE INTO MY SPINE TO DO A MYLEGRAM!
I found out that day that not all doctors are ethical. It was an intern who went through the spinal canal, causing instant paralysis that fateful day. The hospital however decided to not inform me that what had actually happened was I had an incomplete paralysis! I was paralyzed for months. Then when the feelings came back they told me it had all been IN MY HEAD!
nI have had electric sensations all over my body. I have been one of the first to join a group called COFWA. I have seen so many doctors I have given up of ever being able to be treated with respect and dignity. I finally found a pain doctor who went to college with my adopted mother. He had moved to California in his early career. I drive 200 miles a month just to get my RXs from him. IT IS WORTH IT!
I cant say enough about a caring and honest pain doctor. All others I have given up on. HIM however I will cherish and do al he asks.
I have researched and investigated every decent claim about this rare but painful condition. I think I can safely say that one day when God calls me home, I will not only leave my brain and spinal cord, but years of documenting papers so someday they WILL KNOW all about this THING!
I have begun to search out institutions and colleges to leave this precious gift to. I will keep all of you posted. Thanks for letting me vent. God be with all sufferers, everywhere.

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@thelmalouise76 wow Im so sorry what you've have gone through Im glad you found a real pain Dr. Your ,yoir own advocate I never heard of COFWA can you explain?Thank you

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fryeplace | @fryeplace | Oct 26, 2018

The pain shocks are every 10-15 seconds. Too much to bear. Going to a DR.

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1 reply
fryeplace | @fryeplace | Oct 26, 2018

Did you your condition ever heal itself? What has helped so far? I have the same thing.

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lioness | @lioness | Oct 26, 2018
In reply to @fryeplace "The pain shocks are every 10-15 seconds. Too much to bear. Going to a DR." + (show)
@fryeplace

The pain shocks are every 10-15 seconds. Too much to bear. Going to a DR.

Jump to this post

@fryeplace glad to hear your going to Dr let me know what he says and how your doing please take care .

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1 reply
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Oct 26, 2018
In reply to @toiolinger "I am new at the post. I think I have Arachnoiditis. Anyone has this disease? It..." + (show)
@toiolinger

I am new at the post. I think I have Arachnoiditis. Anyone has this disease? It is horrible. Chantaburi.

Jump to this post

Hello @toiolinger, I see that you also found an arachnoiditis discussion, but here is another one you may want to check out too, https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/.

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danibec31 | @danibec31 | Oct 29, 2018
In reply to @switchinggranny "Also I suggest you go check out http://www.endthepain.org/ to find tons of information on TN. MY..." + (show)
@switchinggranny

Also I suggest you go check out http://www.endthepain.org/ to find tons of information on TN. MY pain was in my ear canal. From my blog: http://switchinggranny.com/?s=brain+surgery

And from TNA's site: http://switchinggranny.com/trigeminal-neuralgia-is-deadly-the-patients-kill-themselves-please-watch-the-newest-video-from-the-tna (a video)

My story here: http://switchinggranny.com/my-road-to-brain-surgery-and-more

If when you are on my blog you search (brain surgery or trigeminal neuralgia you'll find lots of links about this condition.

You are in my prayers.

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Hi my name is Danielle my daughter has different types of chronic pain.. like RSD, Dystonia, etc Here in the 2 months she has has the same like but she said she feels like there are spasms in her head then her whole head hurts and she says she feels like she is being electrocuted and her arms go out shaking she makes noises while she is doing that and about 2 weeks ago her right side of her mouth drooped down.. I thought that might be focal dystonia... The neurologist she was seeing.. after over a almost 2 yrs.. now says she doesn't have rsd or dystonia.. So we are trying to find another one...

REPLY
1 reply
lioness | @lioness | Oct 29, 2018
In reply to @danibec31 "Hi my name is Danielle my daughter has different types of chronic pain.. like RSD, Dystonia,..." + (show)
@danibec31

Hi my name is Danielle my daughter has different types of chronic pain.. like RSD, Dystonia, etc Here in the 2 months she has has the same like but she said she feels like there are spasms in her head then her whole head hurts and she says she feels like she is being electrocuted and her arms go out shaking she makes noises while she is doing that and about 2 weeks ago her right side of her mouth drooped down.. I thought that might be focal dystonia... The neurologist she was seeing.. after over a almost 2 yrs.. now says she doesn't have rsd or dystonia.. So we are trying to find another one...

Jump to this post

@danibec31 Has she any other Dr,s? Make be fresh eyes might find another opinion?A Internal Dr or cardiologist?

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dkeedoo | @dkeedoo | Nov 14, 2018

Identical symptoms just started. One spot on my head I cannot touch without the shock reaction. Have a regular doctor appt Monday will talk to him.

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