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Does anyone have DISH and/or OPLL?

Spine Health | Last Active: May 10, 2024 | Replies (74)

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@kilkennyrose

I have OPLL. I'm not sure about DISH. I don't remember it being mentioned, but I might have been in a fog. I went from thinking I had a minor but annoying shoulder problem to finding out I had a rare condition that required almost immediate surgery to avoid becoming quadriplegic. I have it at several levels, but the worst is c4-c5 where the arm nerves come out. I will have surgery next week, finally, after a couple of tense weeks getting clearance from the cardiologist because of aortic stenosis, which is caused by calcification of the valve. It's not clear now whether I was born with a bicuspid valve which was worsened by calcification, or if it was normal and then fused with calcification. I am going to an endocrinologist at the end of the month to see if all this calcification has a root cause. I have found very few people on line with this disease, but there are a few at Inspire.com. Check them out. There are some encouraging reports about recovery.

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Replies to "I have OPLL. I'm not sure about DISH. I don't remember it being mentioned, but I..."

Sure. We opllers are so few we have to stick together, right? I'm all healed from the neck surgery, but just had open heart surgery 3 weeks ago. The tests to prepare for the neck surgery revealed that my aortic valve had gotten much worse, but wasn't quite bad enough to prevent the neck surgery. 6 months later it had gotten so much worse it was almost in critical status. I learned things from my previous hospital stay, plus I was in a different hospital, so this hospitalization was not a problem. I'll probably be home another 3-5 weeks.

I wish you the very best in your recovery.

Good luck to you!!!