← Return to Livedoid vasculopathy
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Replies to "Hey everyone. I've been suffering from livedoid vasculopathy for almost a decade now. Got my first..."
I was just reading a case study on this: "Remission of long-standing livedoid vasculopathy using a whole foods plant-based diet with symptoms recurrent on re-challenge with standard Western diet" https://casereports.bmj.com/content/14/2/e237895 - I was going to recommend it for my father. He had his first symptoms in 2013 and no relief since then despite trying the range of medicines and treatments. It looks like it takes a lot of commitment but when nothing else works it may be worth a try.
Thanks for the post. I will suggest my husband gets uric acid tested. Anecdotally, his reaction to high purine food (red meat, haddock for example) is very pronounced- pain at the site of ulcer under 1 hr after consumption; redness to periwound. An inflammation response that then peels. I can get it under control with betaderm 2 application in 24hours. But if one has large ulcers, wound management mantra is to consume protein to repair understandably. But patients need to be warned not to consume purine high protein sources if high uric acid concentrations help trip up platelet clotting in LV. It would make for a great Mayo Clinic Study for a diet challenge for LV sugfferes with high uric acid to determine how restrictive the diet needs to be. My understanding of purines is that even some plant based food (some of my go to's) are high - oatmeal, dried beans... I find it interesting you got help in India as curcumin seems to helpful in the cessation of the inflammation of epithelial cells problematic in gout and LV. Did you ayurvedic diet recommend specific levels of turmeric consumption?
@victorarrow, welcome. Are you now managing livedoid vasculopathy through diet modifications alone or do you take other precautions?