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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Nov 3, 2023 | Replies (247)

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@patientrea

Hi @ruthnz.First of all my apologies for the delay of my answer.Has your doctor tried blood thinner use;

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Replies to "Hi @ruthnz.First of all my apologies for the delay of my answer.Has your doctor tried blood..."

After the LV diagnosis I was on 300mg of aspirin a day, and the LV which started Jan 2019 finally cleared to nothing Apr 2020. Along the way I tried Xarelto and Trental (pentoxifylline) but my body didn't like them and I reverted to the aspirin both times. So I was clear Apr 2020-July 15 2020 when I woke with red spots from end of toes to top of legs. I saw the Derm a week later and biopsy diagnosis was Leukocytoclastic Vasculopathy and I changed from Aspirin to Colchcine twice a day. Some of the spots turned into ulcers just like the LV spots did. My treatment was the same. Soak lower legs for 20 mins in Potassium Permanganate (just like for LV), clean what I could from the ulcers, apply Emla, go to Hosp Clinic where the District Nurse debrided and redressed the ulcers.. 4th Oct I developed cellulitis and was in hospital 5 days and those Dr's reduced the Colchicine to once a day. Treatment of the ulcers has been the same as for LV. I was finally signed off from the Hosp District Nurse Clinic this week. I still have dried ulcers along the outside edges of my feet and am wearing cotton stocking over them till the dried skin falls off. Still can't really wear shoes 🙁 On the right leg which had the cellulitis I wear compression stockings during the day and take off at least an hour before going to bed. I sleep with the end of the bed raised about 20cm. So far so good. On Monday I'm going to a Homeopath bec my immune system is now attacking my kidneys and I just don't want to go any further down this auto immune road. Five auto immune crap things going on at 68 is enough. I don't want to spend the rest of my life living like this with the possibility of more developing.