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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Nov 3, 2023 | Replies (247)

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@erina306

This is my third year suffering from horrible ulcers. Initially, after my physician finally acknowledging that I was in excruciating pain and seeing the ulcer ruptured, he referred me to a dermatologist. They took a biopsy as well as tons of bloodwork, in which all the “serious” probable causes were eliminated. At that time , the dermatologist felt I had drug induced vasculitis as I was on 2 potential culprits. Out of desperation, even though I’ve been diagnosed with PTSD, I weaned off the meds with help of my doctor. The ulcers subsided. Until the following spring. I noticed my flare ups and ulceration occurs in late spring and lasts until the end of fall. The cycle begins....I was then referred to a dermatologist who’s highly reputable who explained that my ulcers do not match drug induced Vasculitis, but instead it’s Livedoid Vascupathy.
He prescribed me Pentofloxin as well as aspirin daily. The pentofloxen made my heart beat so hard it felt like it would come through my chest as well as shaking. Pretty much like a panic attack times 1000. The aspirin caused thrush in my throat that I thought I kept getting strep throat from the pain and appearance of my throat. Long story longer , lol, I cannot take any type of oral medication due to such a high sensitivity level. My dermatologist decided to start giving me Kenolog injections monthly directly into each ulcer. First round I felt like I hit the jackpot. Then the flare ups went into overload. The pictures I attached are from yesterday. I’m beyond exhausted and feeling defeated. I’ve put on a lot of weight because I can’t even walk properly without shuffling my feet otherwise I feel like my skin will tear open. I use Cetaphil as a wash and I lotion my feet , not on or in the ulcers , with the same brand. I don’t know how much more I can take. It’s taken so much from my trying to function. I know I annoy the doctors with tons of questions but I’m tired of this trial and error. Is there any light at the end of this tunnel?

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Replies to "This is my third year suffering from horrible ulcers. Initially, after my physician finally acknowledging that..."

Hi @erina306,courage!!First of all please accept my apologies for the delay of my answer.Have your doctors tried other blood thinners,since the medications you used were of no help;Please let us know!