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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: May 26 7:04am | Replies (251)

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@zenk

Eva, thanks so much for you answer on Xarelto. I will look into alternatives. What dose were you on of Xarelto?

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Replies to "Eva, thanks so much for you answer on Xarelto. I will look into alternatives. What dose..."

Hello Zenk,
At the beginning I took Xarelto 20mg/day. During the first 6 months I took 20mg/day, than we reduced to 15mg/day, 10mg/day and 5mg/day (one year in total). Than I was free of tablets for a year and a half when it started again. I went back to Xarelto 20mg/day but it never worked again. Than the Dr tried some other alternatives such as Apixaban and Eliquis but nothing worked well. I was so bad with ulcers in October 2018 and than I went to the University hospital. My doctor decided to do more tests to see if there is any other underlying condition and did biopsy but again it was confirmed that it was just livedo vasculopathy. So he put me on injections Fraxiparine different dosages for 13 months, until December 2019. Than the Dr. decided to interrupt Fraxiparine and prescribed Farin tablets. He was expecting the INR values to be between 2 and 3 but I never reached INR value more than 1,8. That's why he told me to start Acenocumarol instead but still my INR values remained very low around 1,2 to 1,5. But still I am ulcer free and the Dr said this is a good indication for me, since I am ulcer free. In the last control I had last week, the Dr. reduced Acenocumarol in hallf tablet a day. I don't know how is this going to work because I am used to very high doses of anticoagulants and I fear the ulcers might come back!
Hope you will understand the chronology here, because I guess am not that good in explaining.
Thank you and best regards,
Eva