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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Sep 4 2:30pm | Replies (253)

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@eva75

Hello Susan,
I've been struggling with LV for over 10 years and I did biopsy that also confirmed LV only. So if you did the biopsy and that confirmed your LV you should't worry that there might be something else. Swelling and redness are also part of the LV. This condition is treated by dermatologists only and the only therapy that works out so far is anticoagulants or blood thinners and the best one is Xarelto. I was on Xarelto tabs for over 3 years and I was ulcer free from 2012 to 2015 but than I became resistant to it. Than I had a bad flare up for over 3 years (during which period I was on various medicine like Colhicine, Trental, Prednisolone, Nifedipine etc, but nothing worked for me) and since 2018 till now I take Acenocumarol that still works fine for me. I am ulcer free for over a year now.
So, I think you should consult a good dermatologist about the LV and anticoagulants. Also, there are some good and friendly groups on Facebook with people that deal with this condition, where you can also find very good advises and learn from their experiences.
Best regards,
Eva

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Replies to "Hello Susan, I've been struggling with LV for over 10 years and I did biopsy that..."

Hi!Very informative and helpful answer.Is there any knowledge about the factors that cause blood thinner resistance?Many thanks!

Eva, thanks so much for you answer on Xarelto. I will look into alternatives. What dose were you on of Xarelto?