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Blood Cancers & Disorders | Last Active: Sep 4 2:30pm | Replies (253)
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Is anyone still monitoring this group? I have LV and I am in desperate condition. Mostly, it is the chronic, excruciating pain for the last 5 years that has me profoundly depressed, exhausted and feeling as if the quality of my life has reached the point of diminishing return. I get flares 4 to 7 times per day that feel like a torch is being held to my feet. I have had the same open ulcers for 5 years. one on the top of each foot. I had 2 other ulcers that took 3 years to heal. I feel as if I am being tortured. Thank you for letting me vent.
Replies to "Is anyone still monitoring this group? I have LV and I am in desperate condition. Mostly,..."
Hi,you're not alone!!Are you taking any medications?
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I don't know if anyone is monitoring or not. I asked a question over 6 months ago and got no reply. I have had an LV ulcer on my ankle for 25 years. It has not healed in the last 4-5 years, and the pain, which seems to hit without warning, is like boiling water being poured on the ulcer. I take aspirin in the morning and Alleve at bedtime for pain. It dulls pain somewhat. When my ankle hurts I put my feet up and try to concentrate on something else (TV, games, book, etc) until the pain goes away. If I wake up and the pain starts I try to lie so that nothing touches the ulcer, and relax my muscles. I can not stand in one place for very long, as this aggravates the ulcer, and I can not walk or work moving around for more than a half hour at a time or I pay for it later in the day. It is depressing at times. Hang in there, you are not alone!