← Return to Livedoid vasculopathy

Discussion

Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Sep 4 2:30pm | Replies (253)

Comment receiving replies
@ayy_cristin

Hey everyone! I first want to say that who ever is dealing with this, I am sorry and I am feeling the same frustration.
I started showing symptoms of this about 3 years ago or more. I first remember being diagnosed as a rash of some sort from shaving. Then I was very sure it wasn't so my family doctor sent me to a dermatologist specialist. I was with her for 2 years and she tried creams, and everything. She tried a variety of medicines on me including methotrexate, and the last one was pentoxifylline. I tried all of these but nothing has really helped. It is on both lower legs/ankles and now it is spreading to my feet on the top sides close to the ankle bone.She had sent me to a cancer center that is in my town in Iowa and the blood doctor was very confused as to why my dermatologist sent me there. She ran tests and she told me I don't have cancer so she was confused as to why I was there. I gave up for the last 3 months. I do not know what to do anymore. I am 23 years old and I have had thyroid problems in my past, and I do have Grave's Disease, so I do not know if that would make a difference. I feel like my doctors sort of gave up because they did not know what else to do with treatment for me. Will you please get back to me... someone?

Jump to this post


Replies to "Hey everyone! I first want to say that who ever is dealing with this, I am..."

Hi ayy, tThe preferred treatment for Lividoid Vasculopathy is Xarelto which is a blood thinner. You must be sure that you indeed have LV. The diagnosis is confirmed with a punch biopsie near an LV ulcer. If your dermatologist did the biopsie, you should perhaps trial on Xarelto under your doctors care.Lividoid vasculopathyt is a vascular disease of the very small vessels . That is wehy blood thinning works well for many of us. Zenk