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Blood Cancers & Disorders | Last Active: Sep 4 2:30pm | Replies (253)
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Not sure if this is still an active blog.
I'm 23 years old and was diagnosed with this a few years ago.
I'm wondering if anyone has the ulcers that itch extremely bad? Or if they have ever had a rash that spreads to their thighs, forearms, buttox, back and stomach from this condition?
Also, how bad is the risk for clots?
I am trying to be on birth control with estrogen for PCOS but I am apparently at too high of a risk because of this condition even while taking aspirin.
Thank you!
Stephanie
Replies to "Not sure if this is still an active blog. I'm 23 years old and was diagnosed..."
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Hi Steph! I have not been diagnosed with LV but I have been struggling with symptoms identical to what has been described in this chain for the last 10 years. I am 29 years old. I got a blood clot and was diagnosed with activated protein C resistance at the age of 19. At the age of 23, a previously very painful chronic ulcer on my right ankle went through a phase of being extremely itchy. In fact, the itchiness spread across my whole leg and got so bad I struggled to sleep. This was treated successfully with cortisone cream and by wearing a compression sock. I was treated in Switzerland. It took several months to heal but the good news was that the scar on my ankle got less painful than before the itchiness. I don’t know why. With regards to birth control, I used a copper IUD for five years since I cannot use hormones. Hoping that you will get rid of the itchiness soon, if you haven’t already!