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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Sep 4 2:30pm | Replies (253)

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@eva75

Hello everyone,
I am new to this group but not new with LV diagnoses actually. I am battling with LV since 2011, with flare ups and short remission periods. Currently, I am in flare up phase and am in hospital for 4 days now. I have been taking Xarelto since 2014 and it helped at the beginning. Thanks to Xarelto, I managed to be in remission for 1,5 years but it came back again shortly after I stopped taking Xarelto. So my doctor introduced them again but this time I wasn’t so lucky because the ulcers continued to spread around my right leg and ankle. The dermatologist insisted I should undergo detailed examinations to see what kind of treatment I should continue because he believes that I became resistant to Xarelto. Currently he has put me to fraxiparin (generic: nadroparin-calcium) injections 2 daily and hopes they will be effective. We’ll see. I am still waiting for my blood test results if they show anything else, although the immunological tests I did over the last 7 year showed nothing else.
I am happy I found you guys 

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Replies to "Hello everyone, I am new to this group but not new with LV diagnoses actually. I..."

Hi Eva, Sounds like your dermatologist is responding to your flare with good attention. Sounds like he wants to get the blood thinned as well as possible. I will be interested in knowing how well the Fraxaparin is helping . What dose of Xarelto were you taking before you stopped taking it? Is he consulting with a vascular doc? I am glad you went into hospital for a new look. Did you have an extensive workup when you first got LV ulcers? Did they look for underlying reasons for LV then? More questions than help I'm afraid, but maybe they will turn up something new. Zenk