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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Sep 4 2:30pm | Replies (253)

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@ethanmcconkey

@angip83 and @msmerry welcome to Connect.

I'm tagging @zenk, and @logansnana, who also have experience with livedoid vasculopathy (LV) and may be able to help you find some answers.

@angip83 you must feel so relieved to have found a cause and solution. Did your rheumatologist explain why the immoglobin G (IgG) deficiency was causing the LV?
@msmerry, you mentioned that you were on pentoxaphylinne, but it stopped working. Has your doctor prescribed any other medication, and if so what are you now using to treat the LV?

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Replies to "@angip83 and @msmerry welcome to Connect. I'm tagging @zenk, and @logansnana, who also have experience with..."

I am so sorry I missed your post, Ethan. I am not used to the forums and how they work. No, my Dr. has not changed any meds nor has he done further testing to find out the underlying reasons. Mostly I am on my own so really really appreciate all of you guys! I see my GP again this Monday and hoping to go in armed with some information for him. We do not have the kind of specialists some of you have seen here. I have actually just started trying CBD Oils as they are now legal in Canada. I am staying as positive as possible but with the pain, I am wearing down quickly. I cannot get anything on my feet other than flip-flops or flat shoes that don't touch the top of my foot or ankle. We are in snow now...LOL, so this is a really fun time.
I just did some more research today and of course, it brought me back here so that has me smiling. I saw Rivaroxaban being tried and the report was dated 2018. I am hoping my Dr. will switch me to this. I think if memory serves me, it was in Brazil.