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Blood Cancers & Disorders | Last Active: May 26 7:04am | Replies (251)
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My GP did the same thing and so I thought it was one and the same. I was just lucky enough to have a surgeon who did the biopsy to find out it was indeed LV. I am in Canada and very little to go on here as well. I was put on Pentoxaphylinne (sp?) and did get relief but now it is back. 🙁
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Hello everyone,
I am new to this group but not new with LV diagnoses actually. I am battling with LV since 2011, with flare ups and short remission periods. Currently, I am in flare up phase and am in hospital for 4 days now. I have been taking Xarelto since 2014 and it helped at the beginning. Thanks to Xarelto, I managed to be in remission for 1,5 years but it came back again shortly after I stopped taking Xarelto. So my doctor introduced them again but this time I wasn’t so lucky because the ulcers continued to spread around my right leg and ankle. The dermatologist insisted I should undergo detailed examinations to see what kind of treatment I should continue because he believes that I became resistant to Xarelto. Currently he has put me to fraxiparin (generic: nadroparin-calcium) injections 2 daily and hopes they will be effective. We’ll see. I am still waiting for my blood test results if they show anything else, although the immunological tests I did over the last 7 year showed nothing else.
I am happy I found you guys