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I had it for 14 years now, large wounds on left shine and ankles. At the first of this year it came out of remission and I still have a deep wound on my left leg and it's very painful. I been on prednisone and four different antibiotics and going to wound care at the hospital and used a wound vacuum and now pads on the wound and a 3 layer compression sock. This Livedoid vasculitis is very painful.
Replies to "I had it for 14 years now, large wounds on left shine and ankles. At the..."
Thank you, it's nice to see that there is more info about LV, The doctors haven't put me on blood thinners yet other then aspirin 325mg (was 81mg). I have been getting treatment from my PCP, my Rheumatologist that's been treating me for Fibromyalgia, a Dermatologist that treated me 14 years ago for LV and those at the Hospital Wound Care. I do have pain most of the time but not all from LV, I have been taking Prednisone and about 4 different antibiotics 2 to 3 weeks at a time for the last 6 months. For the wound treatment I was using a wound vacuum (lots of fun) I was so happy when they told me I could stop using it. but it helped, now I have a 3 layer compression sock. I think I'll be asking about some other treatments, some of the meds are not so good for long term use.
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Hello @gtalan,
Welcome to Connect; I see that you have some excellent support from @patientrea...thank you so much patientrea!
We have some incredible discussions about LV here on Connect. I encourage you to read them here:
– LIvedo Vasculopathy or Livedo Reticularis (whole body face white) http://mayocl.in/2qoA4jr
– Treatment options for Lividoid Vasculopathy (LV) http://mayocl.in/2cH8jhA
– Livedoid vasculopathy http://mayocl.in/2dd7pKa
@spence, @prairiesmoke @mlemieux @angelasmom @vickieb @zenk @gonefishinmt @grandmaabby @srusti @canderson12 @marlene64, would you join in to share your experiences and insights about livedoid vasculopathy?
@gtalan, have you discussed other treatment options (blood thinners, Doxycycline Therapy) with your doctor, or perhaps thought of getting a second opinion regarding getting relief?