@srusti welcome to this community.I believe we have to do everything we can to help your sister.Discussion here helps in many ways.@zenk has talked about xarelto,which has been very helpful in my condition.You have shown us the latest prescription.I see no xarelto.It might be good to have a talk first with her doctor,because any change in medications has to be made only by the prescribing doctor.

Wishing best of luck!

@patientrea thanks for ur reply yes i read about xarelto and its side effects i told my sister to talk about it to her doctor. I hope its available in India or any other substitute.

Thanks

Omg... thats exactly what my leg looks like. I have given up being a guine pig? The only thing I take now is xeralto, an pain meds. None of the meds I've tried did anything,except make me sick. Most days I cant walk..

Have any of you tried methotrexate? Which is a form of chemotherapy.

Hi Tina, What treatments are you on now? The research I have read for Lividoid Vasculopathy and Methotrexate is that Methotrexate is not helpful in LV because Methotrexate is a drug used for inflammation . LV is a vascular disease . That is not to say that it would not help you. I took Metho many years ago for primary sjogrens syndrome and it worked like a charm , because Sjogrens is an inflammatory illness. I took chemo for breast cancrer in 2012 and was in terrible misery with skin peeling on my feet. No chemo for me. Zenk

HinZenk, Right now only Xeralto, due to a dvt in 2015. I have tried all the usual meds, but nothing helped. Went to a new derm doctor an they gave me a months worth of prednisone, due to havi g vasculitis... I've had LV for almost 13 yrs now., but this is the worst it has ever been. It has now moved down my calves, to my ankles an feet.. Have nerve pain, so take gabapentin when needed. I`m just so tired of not being able to walk and enjoy my life.. willing to try all the meds again, an pray for relief. Tina

Hi Tina, Do you have Lividoid vasculitis and lividoid vasculopathy also? Zenk

Funny.. my derm doctor sys its vasculopothy, but my primary says vasculitis, so who knows.

Hi Tina, The reason I ask about Vasculopathy and Vasculitis is because they are each treated quite differently. I was diagnosed with a punch biopsy by a dermatologist , after ruling out Vasculitis by my rheumatologist. I just have Lividoid Vasculopathy. which is a vascular illness of the very small vessels in and around my wounds. If I had Vasculitis , I would have been treated by my rheumatologist with anti-inflammatory medications. Zenk

Zenk, I was diagnosed with vasculopathynafter 3 biopsies.. but my primary care doctor says different and I dont have a rheumatologist.. I am from Ct an this disease is so rare, no one knows how to treat it, so sadly I have been suffering for some time.