← Return to Livedoid vasculopathy

Discussion
angelasmom (@angelasmom)

Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Jun 24 7:35pm | Replies (229)

Comment receiving replies
@kanaazpereira

Hello @grandmaabby,

I’m so sorry to learn about your condition, and I’m glad that you’ve come to the Connect community; you will find that you are not alone, here.

If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63. The number for Mayo Clinic in Minnesota is 507-538-3270

The name atrophie blanche is also sometimes applied to conditions associated with livedoid vasculitis, livedoid vasculopathy, or livedo reticular and patients who present with atrophie blanche may have serious vascular inflammation.
A couple of members @angelasmom and @famalvar75gmailcom have talked about atrophie blanche in the past, and i hope @spence, @amjor2, @vickieb, @swing1929, @zenk, @marlene64, @patientrea, @gonefishinmt, @mlemieux, will also join in and share their insights.

You may also wish to view this discussion about, “Treatment options for Lividoid Vasculopathy (LV)” here: http://mayocl.in/2kZ4s0k and this Mayo Clinic patient story: http://mayocl.in/1l54vIS

@grandmaabby, such debilitating conditions are not only physically draining, but can affect one’s mental/emotional well-being too; how are you finding relief right now?

Jump to this post


Replies to "Hello @grandmaabby, I'm so sorry to learn about your condition, and I'm glad that you've come..."

Just dealing with the ulcers as best I can. It depends on what the ulcers look like day to day on what I use to dress them from unna boot to a manuka honey pad to vaseline (which is what University of Michigan advised me to do) but I have noticed a big difference it is doing to me this past year. I am so tired all the time and not wanting to do all the things I used to love to do. Guess when you can’t wear any shoes you dont really feel good about going out. I am going to look on the links you suggested thank you

  Request Appointment