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Thoracic aortic aneurysm: Anyone had surgery?

Aortic Aneurysms | Last Active: May 10 8:46am | Replies (249)

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@kanaazpereira

Welcome to Connect, Rev.PBR @pbr420,

I realize you must be quite worried, and moved your message to this discussion thread about thoracic aortic aneurysms, so that you can meet fellow members @grandmajan @ch246cf10 @michellr @HeartPatches @jimmorris900 @janean @morningglory. I encourage you to read through the messages in this discussion forum to see some of the experiences and tips they've shared.

Here's some information from Mayo Clinic as well: http://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/home/ovc-20122021

@pbr420, It is natural to feel afraid, but as you will read throughout the discussion, it is a condition that many people live well with. What is your main fear or concern at the moment? Have you spoken with your doctor about this?

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Replies to "Welcome to Connect, Rev.PBR @pbr420, I realize you must be quite worried, and moved your message..."

My ascending TAA was diagnosed at the end of 11/2016 measuring at a 4.2 cm. In June 2017 it was a 4.6 cm. Today 9/7/17 I have been hurting pretty bad with sharp pains between my shoulder blades. I have been to the ER where they tell me-"if you had dissected you wouldn't be sitting here". I think it has grown more and I know my body- that something is wrong. This sharp pain is not normal. I don't know who to turn to. I've put a call in to my cardiologist and surgeon. I feel like to them I am a liability- like they are waiting until it's as close to 5 as possible to avoid a lawsuit if something goes wrong. I am raising my 4 yr old grand daughter. I'm trying to be proactive and positive but this can be so frustrating. Can anyone tell me where I can go that does is much more knowledgeable about aneurysms?

If you can get to a Mayo Cline, please go. I had an aneurysm that was over 5 in 2016 and still had no symptoms. I did have surgery at Mayo and all went well. If you cannot get to Mayo, go to your cardiologist and insist that he or she see you. It's your life, not theirs and you only have one life. I would not worry what a doctor thinks about you. They are there to help so please go asap.

Hello: I just saw your message. I totally agree with crhp194. I had surgery for aortic aneurism as well as replacing my aortic valve. My aneurism was well over 5 and I had NO symptom. My cardiologist in Chicago referred me to Dr. Nishimora at Mayo who advised me to have the surgery done by Dr. Pochetino at Mayo. Surgery was done in early Feb of this year and I am absolutely fine. It is a major surgery but Mayo does a fabulous job and Dr. Pochetino is great. I hope this helps.