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Arachnoid Cyst

Spine Health | Last Active: Sep 16 3:35pm | Replies (233)

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@jseibert

My daughter was recently diagnosed, with arachnoid cyst as an incidental find. Seeing her symptoms and call it mom’s instinct. I feel that she is struggling from the cyst. We had a CT, saw a neurosurgeon and a PA of a neurologist at UW Madison. They feel it’s migranes and want to keep an eye on it and do a scan in 6 months. Meanwhile my daughter has had a headache since Jan 7th feels dizzy and pressure on her head. We want to have an MRI ran and no one thinks its necessary. We were at ER twice last week for a migraine cocktail and the following day for more meds in IV. Both provided relief which lasted about 2 hrs. I called the UW daily last week and got no where. She never had migraines and is drinking plenty of water. She’s missed school for 3 weeks now and we are at wits end trying to get a doctor or nuerologist to do more. Any help or suggestions.

Thanks,

Jen

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Replies to "My daughter was recently diagnosed, with arachnoid cyst as an incidental find. Seeing her symptoms and..."

Hi @jseibert and welcome to Connect. You may have noticed that I moved your post to this existing discussion on Arachnoid Cyst so that you can connect with others who have experience with arachnoid cysts. Click VIEW & REPLY in your email notification to find your post and join the conversation.

I also wanted to share these relevant discussion that you may find helpful.

- Desperate to find a dr. who treats arachnoiditis: https://connect.mayoclinic.org/discussion/i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live/
- Arachnoiditis: https://connect.mayoclinic.org/discussion/arachnoiditis/

It must be awful to see your daughter like this. I wanted to introduce you to fellow Connect members @cmay569 @kyoto @johnbishop and @bessiealice as they have mentioned arachnoid cyst's before and may be able to offer you support.

Back to your daughter @jseibert is your daughter able to do anything while she is out of school like school work? Or is she unable to do anything?

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