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Life after total thyroidectomy after papillary cancer

Thyroid Cancer | Last Active: Feb 3 6:14am | Replies (40)

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@thyroidectomyhe

I know this was several years ago, I hope you found the right dose of meds and life got easier. I had my Thyroidectomy 4 months ago and feel the same way. I feel like I'm going to pass out sometimes too, which is loads of fun when I'm driving. My life went from normal to hyperthyroid storm symptoms and barely being able to function, to having surgery and playing the let's adjust your meds and wait every six weeks to see if it is the right dose game. Meanwhile my slew of symptoms like brain fog, constantly between insomnia and fatigue, the hot flushes, the feeling faint, the sometimes difficulty catching my breath, just feeling off inside out, the head in the top of my head. This is my new normal and I honestly think to myself, "this is what a slow death feels like." Modern medicine in all its wonder can't seem to fix it so I can level and supplememt my absentee thyroid hormones properly. No doctor seems properly trained to recognize the symptoms and look beyond a lab report.

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Replies to "I know this was several years ago, I hope you found the right dose of meds..."

hi thyroidectomyhe, i can understand to a certain extent, but, then again not. i have not had the thyroidectomy yet, said it was papillary carcinoma, then off to get the neck, soft tissue ultrasound to see if it has spread. so where i am at in my mind is.........do i want to go through something that is going to make me feel like you do at this time, i do not like to take medicines, oh, they think i am goood to go for the surgery, never mind my elderly age. i do have vertigo so i can understand your passing out feelings. i am functioning right now and scared to death to not be able to. i mean..........thanksgiving week, i cooked 5 turkeys and 2 cakes. i pushed it, but, i love to do things. so to have surgery or not, to experience what i read others are suffering. my prayers go out to each and everyone that i have read so far. please forgive my childness, but i told the dr. before i left the office, that i feel like a 2 year old and i do not want to do this, she asked me if i was going to have a temper tantrum, i said "no". wishing you the best.