← Return to Gastroparesis with severe symptoms!Discussion
Comment receiving replies
Replies to "I was diagnosed with IBS when I was 18. I'm now 30. Early in 2011, I..."
I’m so sorry for your troubles. It must be awful to have to deal with all the nausea and vomiting, etc. My mom was recently diagnosed with gastroparesis after having a gastric emptying study. They said hers was “moderate” but she’s been having a terrible time with it – throwing up every few days and unable to keep anything down. She’s been in the ER with dehydration several times as well. She has osteoarthritis (along with a number of other medical issues). They put her on Reglan which helps with the vomiting when she can keep it down…It’s been extremely difficult for her. One thing they are looking at is that she takes pain meds for her chronic pain and this may be causing the slow down in her gastric emptying. We are in the middle of all this but just wanted you to know you are not alone and I hope you are able to come to a satisfactory solution – it is a really difficult situation – best of luck!
Hi had a severe case as well. extented stomach severe acid stomach. I gave up all gluten and dairy products and all my symptoms went away . it was a miracle.
Try Align. You can get it at Sam’s or Cosco. It’s a probiotic. I have Gastroparesis as well and though it hasn’t healed me, I can truly tell a difference. A doctor at Mayo in Arizona told me about it. Also, suck on peppermint candies. That helps me tremendously with nausea. Zofran has not helped me at all. You are not alone.
My neurologist prescribes 250 mg of Erythromycin to be taken 3x a day (total 750mg daily) to help control symptoms, and it works. Does not fix the problem, but without the Erythromycin I have the severe nausea, vomiting, bloating, and cramping but when I take the Erythromycin and eat small, carefully selected meals, I find that between the two it’s much easier to control and sometimes I have days where I have no nausea at all. My delayed emptying problems are due to neurologic disease, so I don’t know if this will help you or not, but I hope it does. I second Jane’s comment—you are not alone. Sending well wishes, always.
Hey! OMG I have a mild delay too! My first emptying test said 59% emptied in 2 hours and at 4 hours I had 23% left. My second 4 hour was 64% emptied in 2 hours and 9% at 4 hours. It’s always slow at 4 hours as you can see. That’s usually when I get the most nausea too is hours after eating. What was your test result? My symptoms were so severe that I got a pacer and I love it! I feel pretty decent now. My bloating isn’t so bad anymore.
, I have been diagnosed with gastroparesis. Been trying the liquid diet, but can’t do that all the time. If I eat a normal amount of food, the symtoms are worse. small amounts more often. I get acid reflex really bad, have to sit up at night till I fall asleep, All things I take for acid reflex slow down the emptying of the stomach, Can’t win,. Any suggestions. Trying to get an appointment at Mayo in the gastrology dept. but no luck.
have had this disease for 4 yrs now. i am 75 yrs old and have no life. have had several drs say “nothing we can do” would a trip to mayo help?
Welcome to Connect @faycarole. I moved your message to this discussion about gastroparesis to connect you with other members. I’d like to introduce you to @kendrakay, @margieg, @sherry8034, @dawn1952 and @citygirlannie.
Fay, here is some information about treating gastroparesis from Mayo Clinic http://www.mayoclinic.org/diseases-conditions/gastroparesis/basics/treatment/con-20023971
To contact Mayo Clinic, click this link http://mayocl.in/1mtmR63 for the contact information in Minnesota, Florida and Arizona. They will be happy to help assess your situation.
What symptom or symptoms do you find the most challenging to manage?
My stomach emptying test showed I have a zero digestive system. This was due to a surgery last year to pull my stomach down to where it belongs. It had gone thru a large hernia and it got lodged behind my heart and it was leaning on my lungs. My only systems were shortness of breath, weight gain and a very swollen stomach. After the surgery was when the vomiting and diarrhea, and cramps started. I’ve seen 6 gastro. doctors and I’ve taken every medicine there is. I even tried Botox and pot. I have lost over 50 lbs. I have dry eyes, hair loss, teeth problems and no energy. All the doctors agree that the vegas nerve was cut or badly damaged and it can’t be repaired. You mentioned that you have a gastric pacemaker. Can you please tell me more about that. I don’t want a feeding tube if it can be avoided. Thanks so much for sharing.
I have taken zofran for nausea and it seems to actually make me worse and vomit. I have IBS and when I have an attack I disolve a Symax FasTabs (levsin with a unique distribution to get into system fast) tablet under my tongue. The generic does not disolve. You need the brand. NuLev was best but they don’t make it anymore. I also have gastroparesis (quite significant but not with all your bad symptoms). Unfortunately for me it does not make me lose weight even though I have little appetite.
It sounds like you have much more than IBS going on and don’t let them push it off as psychiatric! I wish you could get worked up at Mayo clinic. I’m sure with the way they do work ups there they would figure this out.