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Diagnosed with Cerebral Venous Sinus Thrombosis (CVST)
Stroke & Cerebrovascular Diseases | Last Active: Oct 16 11:56am | Replies (91)Comment receiving replies
Hello everyone, I'm a young 25 y/o female and I was diagnosed with CVST in September last year. I had severe headache and vomiting. I had dehydration. Went to ER for dehydration on Sunday. Mentioned about my headaches also, they ignored it saying could be any common cold. Came back, same state. Headache, nausea, vomiting for 3 days, until my body have up and I had a seizure attack on early Thursday morning. I never had that before. That's when my bf called up 911 and they took me to hospital where they did CT scan and found CVST. Confirmed it by MRI and MRA. I was on blood thinners for 4 months and now my clot have dissolved. I still worry that they might come back. Because it was very scary experience at this young age.
The reason given for it was: birth control , dehydration, I had taken a flight 2 weeks prior to the onset of headaches so doc said that could also contribute.
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You said that "now my clot have dissolved"------does that mean it no longer shows on the scan?
In April I got diagnosed with CVST. While in the hospital, the neurologist said that in 6 months we hope it would be smaller. I recently had another scan. When I saw the same neurologist, he said it has not gotten smaller, and he wouldn't expect it to get smaller. He said it was "stable" and that blood was getting through it. He compared it to a scar on his finger: that it healed but still has a scar. My adult daughter was with me both times. She, too, remembers that in April he said he would expect it to look smaller on the scan, and now he is saying that he doesn't. He says that I can go off the blood thinners in a month. I am afraid to go off of them because: 1. the discrepancy in what he said; 2. my brother died this past year when he was taken off blood thinners for an outpatient procedure of kidney stones; 3. I was diagnosed in Febr. with skin Lupus (my aunt died of Lupus many years ago) and I've read that blood clots can be related to Lupus.