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Diagnosed with Cerebral Venous Sinus Thrombosis (CVST)

Stroke & Cerebrovascular Diseases | Last Active: Oct 16 11:56am | Replies (91)
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@ethanmcconkey

Hi @dphillips3108 and @gtownsend. Welcome to Connect.

I wanted to introduce you both to eachother and also to @segalit in hopes that you all can provide support for each other.

@dphillips3108 it must be heartbreaking to watch your daughter struggle so much. How is she doing now? How is she being treated at this time?

@gtownsend those migraines must be so frustrating since you had never had them before. How are you being treated at this time? Can you do anything to lessen their severity?

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Replies to "Hi @dphillips3108 and @gtownsend. Welcome to Connect. I wanted to introduce you both to eachother and..."
gtownsend | @gtownsend | Feb 10, 2019

I take 200mg of Trokendi and 20mg Amitriptyline daily. I never experienced headaches before that day I have vision loss and daily headaches along with slight memory loss so I make lists. I am so thankful for my neuro team because they continued to support me and look for answers. I know my outcome could have been much loss!! I am just not sure if treatment options moving forward???

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