Thanks for your note! I was 35 when I was diagnosed and was otherwise a very healthy person. Like you, all of my blood tests came back normal for any pre-dispositions to blood clotting. I was on oral contraceptives, which they feel may have provoked this. I did not have any issues with vision. My only symptom was a horrible headache that wouldn't go away for almost 10 days. I finally had an MRI and was admitted to the hospital for just under a week and put on IV Heparin. I was on Warafin for 6 months following that. I have not had any recurrences (going on a year and a half now), but am still a bit concerned. I had a 2nd MRI at the 6 month mark and there was slight improvement, but it was not gone yet. I, too, feel very lucky to be alive and credit great doctors for catching this before brain damage or worse occured. Thanks for writing... Touch base if you have any more questions or if you come across any interesting info on this.

Hello, I was diagnosed with CVST last year of March. I had ten blood clots to the brain and had sever swelling. I also had a change in vision, because of the swelling pushing on the optic nerve. I was put on a medication to reduce the swelling, but the vision change was permanent.