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Myelofibrosis w/ JAK2 mutation
Blood Cancers & Disorders | Last Active: Mar 30, 2023 | Replies (39)Comment receiving replies
Hello, My son will be 62 in August and he has been taking the drug Hydroxyurea Caplets now for over one year. These pills make him sick and really tired. He is a Plasterer by trade and hasn't been able to work this whole past year. Also his body hurts all the time and the doc won't give him any pain pills. As no work-no money=no insurance. He has lost his business as he couldn't work the jobs. Round robin of problems. He takes the medicine after dinner and just goes to bed. Any Body out there who has had better luck???? One doc told him if he stopped the pills he would be dead in six months. (he doesn't see that guy any more)....... His mom!
Replies to "Hello, My son will be 62 in August and he has been taking the drug Hydroxyurea..."
He is supposed to see the doc in August. I think the blood test was three months ago. His whole body hurts. He is depressed a whole round robin of things. He had a friend that told him he heard on TV that "Radiation causes this. I don't know his platelet count. He does not share a whole bunch with me as I have two kinds of lung cancer Meso in the left & plain cancer in the right. He doesn't want me to worry. HA! I'm his mom, ME not worry! What is he thinking about?
I am so sorry to hear if your serious health issues for you and your son !
No one should have pain . Can your son be more assertive in getting support for pain management through his dr ? He may need to have medical attention before August .
He has asked & asked his doc for pain pill. Doc tells him this medicine should not hurt and refuses to give him any. After he has had to quit and de-solve his business he doesn't have any insurance to go get another doc. Round robin of BS.. that is the # 3 son above. #2 son's first wife died of Melnomah and second wife has lung cancer.....Then I tell him that I have two kinds lung cancer. Husband has had several different cancers/lymphnomah,.....Sorry very tired and can't seem to spell tonite. please forgive. (shortshot80)
Hi geal) His whole body hurts. He has a appt in August. He is unable to change doctors, as he doesn't have any insurance, no $ to pay another. His just beat after he takes the pill around 5-6 pm. I don't know when the next blood test is. (shortshot80)
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When was his last blood test? Red platlet count ? White cell count? Where is pain located? Condition of spleen ? Ruxolitinib is best medication for me and I have had myelifibrosis for past five years. Hydroxyurea stoped working for me