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Myelofibrosis w/ JAK2 mutation

Blood Cancers & Disorders | Last Active: Mar 30, 2023 | Replies (39)
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@suthrnkisses

I have mds... leukocytosis and have been taking ydroxyurea since sept.of 2003 to keep my white count under control so i don't get full blown leukemia.I started out on 2 grams a day and now have worked my way down to 1000 mgs a day. it seems to be working well for me so far. God bless you and i hope whatever treatment you receive works for you.

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Replies to "I have mds... leukocytosis and have been taking ydroxyurea since sept.of 2003 to keep my white..."
Bijou | @bijou | Jul 17, 2011

Thank you I am looking into many things at the moment, perhaps a clinical trial for one of INCYTE's new JAK2 inhibitorss. I am so glad your treatment is working for you.
Could you please do me a favor as I am trying to get my site interactive with responses like yours, as they re valuable to me and to others. Would you mind cutting and pasting your response onto http://www.healingcreatively.com I would be so appreciative. I wish you well. Again, thank you, we are considering hydroxyurea for the high white count and enlarged spleen.

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