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Hi Kathy @kmkaye,
I'm tagging Connect's wonderful Mentors, @rosemarya @johnbishop @hopeful33250 to see if they have any information that may help you.
I realize you've searched extensively for information, but I dug a little deeper and found this information:
"Clinical features of ehrlichiosis and anaplasmosis are similar. Although some infections are asymptomatic, most cause abrupt onset of an influenza-like illness with nonspecific symptoms such as fever, chills, myalgias, weakness, nausea, vomiting, cough. headache, and malaise, usually beginning about 12 days after the tick bite."http://bit.ly/2veN0L9
Subsequently I found this past discussion on Connect, that you may want to read, "ehrlichiosis" http://mayocl.in/2tKMshV, and it is my sincere hope that @lymebytes will return with some insight.
@kmkaye, if you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
Replies to "Hi Kathy @kmkaye, I'm tagging Connect's wonderful Mentors, @rosemarya @johnbishop @hopeful33250 to see if they have..."
Hi Rosemary, thank-you for your post. I am also an organ donar (kidney, 15 yrs ago). I had not heard of exercise induced asthma. Perhaps that is what i have which was triggered by the anaplsmosis--i will ask the pulmonary specialist about it at my appt on the 17th. I do know that shortness of breath is a long term effect of anaplasmosis (when i asked my GP about an inhaler (which helps my friends with asthma, etc), he said that an inhaler does not help with anaplasmosis. I hope to have answers on the 17th . Again, thank-you for your insight
@kmkaye, Good luck with the Doc on 17th. I want to alert you that if he does go with the exercise induced bronchospasms (EIB) diagnosis that it might take a little time to get the right combination of inhaler and/or treatment that works best for you.
Thank you for sharing the information about being a kidney donor. I am double happy to meet you here and be in conversation with you. You are a hero in my mind and heart. I received a liver/ kidney in 2009.
Rosemary
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Hi @kmkaye, Thank you, Kanaaz, for bringing me into this discussion.
I too experienced a rather sudden onset of shortness of breath, joint pain, tiredness, headaches when I was being tapered off prednisone. I am an organ transplant recipient and I am hiker. I needed to seek help after I went from walking 4,5,6 miles in prep for hiking trip, to being breathless walking thru parking lot or going up flight of stairs.
I have been diagnosed with exercise induced asthma (bronchospasms). It is likely that my prednisone taper triggered it. I have been checked by cardiologist and pulmonologist. The trigger is hot and humid weather, and compounded by seasonal allergies.
I would be happy to continue this discussion with you if you would like .
Rosemary