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Costochrondritis/ Tietze syndrome
Chronic Pain | Last Active: Mar 4, 2019 | Replies (51)Comment receiving replies
@I have just joined Connect and already I am greatly impressed. Hope somewhere out there can help. I was born with Taybi Syndrome, other craniofacial defects and a moderate to severe "funnel chest," or Pectus Excavatum. All my life--I am 69--I had trouble breathing. First it was diagnosed as Chronic Restrictive Pulmonary Disease, then COPD. Early on I developed some sort of inflammation in my chest cartilage causing severe chest pain, soreness all over and muscle pain so bad I was bedridden. At age about 30 a cardiologist said I had "tstse" Fly syndrome (wrong spelling) which has plagued me to this day. The pain is so bad it is like having a heart attack. (Which I already had. Has anyone else out there suffered symptoms of this bad inflammation and have any answers on relieving the pain? How do other people cope with chest pain unrelated to a heart attack? I would so greatly appreciate your help as I feel so alone. Thank you! Regards, Peggy J.
Replies to "@I have just joined Connect and already I am greatly impressed. Hope somewhere out there can..."
Good morning @peggy1944 and Welcome to Mayo Connect. I am so sorry that you are in such pain. Have you ever heard of costochondritis? I had it once and the pain that you are describing certainly sounds like it. It really is excruciating. Many things can cause it. I just took anti-inflammatory meds. I also rested, a lot. Have your doctors prescribed any medicines for your pain? Have you told your doctor that you still hurt? It can take some time for it to heal. I hope that this helps. Please let me know how you are doing.
https://www.nhs.uk/conditions/costochondritis/
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Hello, @peggy1944, and welcome to Mayo Clinic Connect. That is very hard to be in such pain, have breathing trouble and also feel alone. I've moved your post into this discussion, "Costochrondritis/ Tietze syndrome" in hopes that you can meet others with this diagnosis and receive support. Please meet @corinna @shshank_gaurv, @grandmar and @virtuous69, who may have some insights for you, especially on relieving the pain. @merpreb may also have some input.
Just to confirm, you also have Rubenstein-Taybi Syndrome, https://ghr.nlm.nih.gov/condition/rubinstein-taybi-syndrome?
What treatment have you undergone thus far with the Tietze syndrome? Has it helped you at all with the pain?